Romano Ward Syndrome

Romano Ward Syndrome Important
It is possible that the main title of the report Romano Ward Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

• Long QT Syndrome without Deafness
• Autosomal Dominant Long QT Syndrome
• Long QT Syndrome Type 1
• LQTS1
• RWS
• Romano-Ward Long QT Syndrome
• Ward-Romano Syndrome

Disorder Subdivisions

• None

General Discussion

Romano-Ward syndrome is an inherited heart (cardiac) disorder characterized by abnormalities affecting the electrical system of the heart. The severity of Romano-Ward syndrome varies greatly from case to case. Some individuals may have no apparent symptoms (asymptomatic); others may develop abnormally increased heartbeats (tachyarrhythmias) resulting in episodes of unconsciousness (syncope), cardiac arrest, and potentially sudden death. Romano-Ward syndrome is inherited as an autosomal dominant trait.

Resources

International Long QT Syndrome Registry
Heart Research Follow-up Program
Box 653
University of Rochester Medical Center
Rochester, NY 14642-8653
Tel: (585)276-0016
Fax: (585)273-5283
Email: heartajm@heart.rochester.edu

American Heart Association
7272 Greenville Avenue
Dallas, TX 75231
Tel: (214)784-7212
Fax: (214)784-1307
Tel: (800)242-8721
Email: Review.personal.info@heart.org
Internet: http://www.heart.org

Sudden Arrhythmia Death Syndromes Foundation
508 E. South Temple
Suite 202
Salt Lake City, UT 84102
USA
Tel: (801)531-0937
Fax: (801)531-0945
Tel: (800)786-7723
Email: laura@sads.org
Internet: http://www.sads.org

NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: nhlbiinfo@rover.nhlbi.nih.gov
Internet: http://www.nhlbi.nih.gov/

QTsyndrome.ch
Ronnerweg 2
Nidau, 2560
Switzerland
Tel: 0041794741535
Email: info@qtsyndrome.ch
Internet: http://www.qtsyndrome.ch/index.html

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org